How To Help


The Usher Syndrome Coalition and the USH Trust

Usher syndrome is the most common genetic cause of combined deafness and blindness. The Usher Syndrome Coalition is the only organization in the world seeking to identify and connect individuals and their families with Usher syndrome to researchers and critical resources.

The USH Trust is managed by the Usher Syndrome Coalition and is the largest international Usher syndrome registry in the world.